Tues 2nd July, my mums birthday, so already a special day for us but at around 10am Rhanna came into my room crying and behaving like a lunatic…why? Because she went for an audition for BBC television series called Shetland with Douglas Hensall and OH MY GOD she got the part!
So filming starts Friday and Andy and Rhanna are to do a mega early to drive through…… I am unbelievably proud of her, indescribably proud of her actually, she has so much to deal with in her life and this is just what she needed! A total confidence boost for her. There is no doubt in my mind that this is just the start for Rhanna and her friends Poppy and Hazel were here so she had someone to jump about mental with and I promise, those two are mental!!
I have to tell you about the auction, it raised £140! So I’m going to keep doing it hopefully our very lovely, amazing, sounds like jelly, but doesn’t like to be named beautiful blog lady will put the link on for me again this week. You can view the auction here.
I don’t know how long I will manage with it but for as long as I can, I will and thank you to Donald for his visit and American gift (photos are funny) and thank you to Anna as always my text pest and to Nicola for listening!
As for me, well I just continue to sleep, we were very lucky this week, as I wasn’t feeling great (that’s not lucky bit) the lucky bit was that Katie Rigg came to us this week (if the mountain won’t come to Mohammed) anyway she was up for the support group and took a chance on us being home. I’m very grateful to her for doing so, she really is wonderful lady who works so incredibly hard and still manages to look wonderful!
It’s so good to be able to sit and say how things really are for you and also she was reassuring, talking about my slurry speech and so on, then of course the longer she’s in the more comfortable you become about asking the harder questions and out comes the tears, the snot and the hankies!
Being able to speak to an MSA nurse is priceless, you cannot put the value on how very important they are and the thought that there are only two MSA specialist nurses covering the UK is unbelievable, even more unbelievable is that they aren’t funded by the NHS, isn’t that incredibly disgusting!
There are over 121 different services from hostels to rehab to accessing support and specialist services in Scotland for people with drug and alcohol addictions, I myself have actually worked in that area before becoming ill and although I know these services are desperately needed, when you become ill with a problem that wasn’t in anyway your fault it’s very hard to understand the lack of support so it’s thank god for charities like the MSA Trust and our two very special nurses!
Katie and I spoke about a subject that always seems a bit taboo…, Poop yep the very subject no one ever wants to mention to their doctor but whether it running from you or just won’t budge you need to see your GP and keep going back, if at first it does succeed there will be something else, having MSA is enough to contend with without having to worry about Poop (apparently none of my friends poo and the queen has someone come in and wipe her posterior) now that’s POOP! Please don’t suffer if it is problem and if you are embarrassed write it down…
The GPs themselves will themselves have had the same issue! Someone very, very close to me, I won’t mention her name but she knows who is once told me that whilst on holiday with her husband she was very bunged up so her husband suggested a kebab…Well lets just say she left the toilet a few pounds lighter and a zillion times happier! Obviously we can’t do kebabs unless they are liquidised (MINGING) so at present am stuck….Stuck hehe with lactolose or senna or horrid drinks…!
I wish you all a good week, my aim this week is to try and stay for at least two hours! It’s my sisters birthday 7th July, happy birthday baby sister, love you always xxxx
Sooooooo guess what everyone, I got a relatively main part in a series here and have started filming!!! I promise to let you all know when it’s coming on but fingers crossed this is just the beginning.
It’s been said my mum is Granny’s favourite and I want to say something, she doesn’t have favourites, she’s the most awesome granny anyone could ask for, I love staying over and having our wee yaps in bed and I know she loves mum, Auntie Becky and Auntie Lisa all the same and she’s right when she says, she can’t do right for doing wrong.
My mum needs her mum just now, more than anyone knows and I speak to mum all the time about her Granny. Mum tells me all the stuff about herself, she thinks she did wrong, who she hurt and how horrible she was, I can’t ever remember mum being like that so how then could she be favourite and she definitely wasn’t in 2001? She got her heart broken then.
Not just then others time too. What will I do when mum dies? It’s questions I know goes around in my mums mind. She misses Auntie Lisa so much and she wanted her to get roller skates so they could be Olympic champions, mum would be in her chair, I know you say there’s always more to it, but sisters can have relationships without husbands always there, mum is going to die Auntie Lisa and you and her will never break anymore records and be champions. We aren’t meant to be talking about this stuff in this week’s blogs but I suppose it shows illness doesn’t stop fall outs. It’s meant to be about Granny’s birthday and my job but I’m the same as my Granny, if it needs saying, then say it!
Mum’s birthday is next week and we are going on a barge! So exciting and I know she has Carol and Torsten coming both of whom have been touched by MSA in different ways. I know she wanted Paul, etc but I know they will all be wishing her a happy birthday, there’s still time to send a birthday card to her I can give you the details if you email me email@example.com.
She also has the auction going on raising money for the trust. You can see it here. You need to click on to photo’s, the albums, then charity auction for MSA to see them.
I will be able to tell you lots more about my filming next week once I’ve been in a couple of times.
My Granny had a fab birthday on the 2nd (should have mentioned this first oops) anyway she was 63 so Andy put a 50 candle on it then 13 candles hehe! She wanted photographs from mum, so mum got that sorted and we adopted a meerkat called Wilma, which is my Granny’s name hehe, so she ended up with two meerkats, Dvd’s and a microwave hehe! Some combination and I’m not sure what her other gifts were but she said her favourite was my phone call telling her I got the part!
Happy birthday Auntie Lisa, love you mum, all the way to the moon and back again xxxx xxxx xxxx xxxx